Hi Everyone!
I have been thinking about writing something positive for a change and not just complaining about the pain. Seems like my life is pretty much consumed with pain though. I just can't think of anything really positive to write about. Fibromyalgia is a very negative subject for me.
I have read quite a lot of blogs and it seems like I'm sort of in the same situation as most of the other fibro sufferers. That is the people who has full blown fibro of-course. Seems like there is a difference. There are some people that say their fibro is under control without medication etc. Is that possible? I have tried it both ways. With meds and without meds. Exercising and massage etc. The whole caboodle! Even stuff like acupuncture. So far nothing has worked for me. I'm still looking for the right thing. As a matter of fact, over the last two years it has just gotten worse.
I am sick of trying everything that's on the market. All the supposedly miracle cures for fibro etc. As far a I know, there is no cure for fibromyalgia. This I'm pretty sure about. If there was a cure we would have all known about it. There's only stuff for the symptoms and that only works for some people with fibro. My personal opinion is that those things help for people with some signs of fibro and not the ones with full blown fibro. Maybe they had some deficiency and taking supplements has helped for it and hence the miraculous recovery! There are many deficiencies that can present as fibro symptoms. So when I hear people are cured, and not using anything but positive thinking and a couple of vitamins I'm very skeptical. If I could cure myself by positive thinking I would have been better by now.
I have always loved doing things for myself and loved being independent etc. I have hopes and dreams and so many things I still want to do in life. I definitely did not choose to feel this sick all the time. I would do almost anything to just feel better. Even if it was just for a couple of days a month. To be pain free for one day would be a miracle!
I love it when I read some medical journals and they say that fibromyalgia is no mystery and that, with the right guidance, you can live a normal life. Now, in my opinion a normal life would be getting up rested in the morning, going to work, managing your house, children, house work etc, cooking, feeling good, going places, having friends over, going to movies, visiting places. Also sleeping through the night, and have I mentioned living this life absolutely pain-free! Oh yeah! Sure, bring it on! If I could live just half a normal life it would be so great! Please cure me! Fibromyalgia is a mystery otherwise we would all be cured by now!
I know some people would probably not agree with me, but this is just my opinion and just me writing what I'm feeling!
Thanks for reading!
Monday 29 October 2012
Sunday 21 October 2012
Hanging in there!
Hi Everyone!
I have been away for quite a while! It's funny how life can just sort of take over and before you know it 10days have past. That's how long it's been since my last post. Whenever I thought of writing on my blog I was either too tired or not home.
I've been busy with my 10yr old's birthday party. Lots of planning and baking! It's been raining not-stop for the past week and we had to have the party inside. The Pirate Party turned out a great success and I'm super glad all the birthdays for the year is over!
Since my children were little I have always made their cakes myself. No ordering from someone. They now expect me to make their cakes and also whatever they ask for. They have so much faith in me. So far all my cakes have been pretty ok. The kids have loved it and when they're happy I'm happy! But over the last year it has not been as much fun making them as it used to be. The fibro has taken my joy out of making cakes. The hours of standing upright and bend over is like torture. I am still sore and stiff since Thursday after making the cake. I do it with love though for my kids! When I see the joy on their faces the pain just doesn't matter anymore!
Now to get back on to the fibro subject. I have been taking a supplement for the last 12 days. So far there has been no change. Everyone is telling me that it takes long for any natural thing to help and that I'm too impatient. Yes, I am impatient. Anyone with so much pain would also be desperate and impatient to have some relieve. I have been taking a receptozine (an anti-histamine) together with my sleeping pill at night. It helps me to sleep, but makes me feel very groggy the next day. I don't take it in the week because I have to be up at 6am and get the kids ready for school and drive etc. So when it comes to weekend I take it and try to stay in bed as much as possible and get the sleep I so desperately need. It helps to keep me asleep, but I have not one morning gotten up that I feel refreshed and ready to go! It is like I'm not getting the right type of sleep.
I have also been taking painkillers at least once a day. I don't take the same ones everyday. I try to alternate so I don't get used to just one. Sometimes it helps for a couple of hours and at least I get things done. The one painkiller - tramahexal - works pretty well for about 4hours, it actually gives me a kick, and then I have a terrible come-down of it. I would suddenly feel extremely irritable and can't handle any noise and stuff like that. At least I know now what does it so I handle it better! I have found that now that I'm of the Lyrica and trepeline, I have much more control over myself. I know for a fact now that the Lyrica didn't help for me. I know now, when I take something, exactly what it does to my body and whether it works.
I will try to blog more regularly again! Thanks for reading!
I have been away for quite a while! It's funny how life can just sort of take over and before you know it 10days have past. That's how long it's been since my last post. Whenever I thought of writing on my blog I was either too tired or not home.
I've been busy with my 10yr old's birthday party. Lots of planning and baking! It's been raining not-stop for the past week and we had to have the party inside. The Pirate Party turned out a great success and I'm super glad all the birthdays for the year is over!
Since my children were little I have always made their cakes myself. No ordering from someone. They now expect me to make their cakes and also whatever they ask for. They have so much faith in me. So far all my cakes have been pretty ok. The kids have loved it and when they're happy I'm happy! But over the last year it has not been as much fun making them as it used to be. The fibro has taken my joy out of making cakes. The hours of standing upright and bend over is like torture. I am still sore and stiff since Thursday after making the cake. I do it with love though for my kids! When I see the joy on their faces the pain just doesn't matter anymore!
Now to get back on to the fibro subject. I have been taking a supplement for the last 12 days. So far there has been no change. Everyone is telling me that it takes long for any natural thing to help and that I'm too impatient. Yes, I am impatient. Anyone with so much pain would also be desperate and impatient to have some relieve. I have been taking a receptozine (an anti-histamine) together with my sleeping pill at night. It helps me to sleep, but makes me feel very groggy the next day. I don't take it in the week because I have to be up at 6am and get the kids ready for school and drive etc. So when it comes to weekend I take it and try to stay in bed as much as possible and get the sleep I so desperately need. It helps to keep me asleep, but I have not one morning gotten up that I feel refreshed and ready to go! It is like I'm not getting the right type of sleep.
I have also been taking painkillers at least once a day. I don't take the same ones everyday. I try to alternate so I don't get used to just one. Sometimes it helps for a couple of hours and at least I get things done. The one painkiller - tramahexal - works pretty well for about 4hours, it actually gives me a kick, and then I have a terrible come-down of it. I would suddenly feel extremely irritable and can't handle any noise and stuff like that. At least I know now what does it so I handle it better! I have found that now that I'm of the Lyrica and trepeline, I have much more control over myself. I know for a fact now that the Lyrica didn't help for me. I know now, when I take something, exactly what it does to my body and whether it works.
I will try to blog more regularly again! Thanks for reading!
Friday 12 October 2012
I hate my disease!
Hi Everyone!
I survived the week. I'm so tired I could just go sleep right now! If only..! I slept through last night. Miracles do happen occasionally. Wish I could have just slept the whole day. I have started doing my pilates again and think I have been so tired that eventually my body just gave in. Even though I slept through the night I just don't feel better. I actually feel like I only slept a little. Think it will only really be effective if I slept through for about a week or so. And what's the chances of that happening?
I received the supplements I ordered yesterday and started taking it. It is, for lack of a better word, disgusting! It's a powder that you have to mix with water and drink it. They describe it as a refreshing energy drink that tastes so good that even kids would love it! Oh my, my kids won't touch it. I know I have to drink it to see whether it works or not, but I don't know if I could use it for the rest of my life! Will have to figure out a way to make it more appetizing. Maybe mix it with a fruit smoothie or something.
So, this is the start of me trying different supplements. Let's hope it leads to something good. At the moment I'm so tired of medication. And so tired of this debilitating disease! Wish I could get of the pain medication, but so far it has not been an option. I can only handle so much pain! Hoping that doing pilates will help a bit with it.
As you can see I'm moaning a bit and sound a bit depressed. Well, this illness can really get one down in the dumps. I sometimes think, how can it be possible for one person to feel so sick and in pain? Here I sit with it all and I am struggling to believe it. I think people that don't have fibro have no idea what it is really like. It is impossible to describe to someone else. That is why we all have to stick together and encourage one another to stay strong! It does make me feel better when I read other people's blogs and they know how I feel. At least I'm not alone!
Thanks everyone for blogging and making me feel better!
I survived the week. I'm so tired I could just go sleep right now! If only..! I slept through last night. Miracles do happen occasionally. Wish I could have just slept the whole day. I have started doing my pilates again and think I have been so tired that eventually my body just gave in. Even though I slept through the night I just don't feel better. I actually feel like I only slept a little. Think it will only really be effective if I slept through for about a week or so. And what's the chances of that happening?
I received the supplements I ordered yesterday and started taking it. It is, for lack of a better word, disgusting! It's a powder that you have to mix with water and drink it. They describe it as a refreshing energy drink that tastes so good that even kids would love it! Oh my, my kids won't touch it. I know I have to drink it to see whether it works or not, but I don't know if I could use it for the rest of my life! Will have to figure out a way to make it more appetizing. Maybe mix it with a fruit smoothie or something.
So, this is the start of me trying different supplements. Let's hope it leads to something good. At the moment I'm so tired of medication. And so tired of this debilitating disease! Wish I could get of the pain medication, but so far it has not been an option. I can only handle so much pain! Hoping that doing pilates will help a bit with it.
As you can see I'm moaning a bit and sound a bit depressed. Well, this illness can really get one down in the dumps. I sometimes think, how can it be possible for one person to feel so sick and in pain? Here I sit with it all and I am struggling to believe it. I think people that don't have fibro have no idea what it is really like. It is impossible to describe to someone else. That is why we all have to stick together and encourage one another to stay strong! It does make me feel better when I read other people's blogs and they know how I feel. At least I'm not alone!
Thanks everyone for blogging and making me feel better!
Tuesday 9 October 2012
In full swing!
Hi Everyone!
The kids are back at school and everything is back in full swing again. Especially my fibro! The driving and little sleep has got me in bed again! Think the fact that it's cold and raining is not helping either.
Holiday time is better for me. I don't have to drive so much and also don't have to get up so early. I have ordered a supplement that I will hopefully have on Thursday. I'm sure I have a shortage of something. Maybe it will help for that. Now I have to just tell myself everyday to pace myself and not overdo it. That is so difficult to do with four kids in school. Just have to keep my chin up and move forward!
I have experienced the funniest thing. About 4 weeks ago I got bitten by a mosquito in two spots. It made really big red marks that stayed for about two weeks. Then it turned into bruises which I still have! Don't know what to think of it? Should I be worried? Maybe its just my funny body that's not working the way it should.
Happy blogging and thanks for reading!
The kids are back at school and everything is back in full swing again. Especially my fibro! The driving and little sleep has got me in bed again! Think the fact that it's cold and raining is not helping either.
Holiday time is better for me. I don't have to drive so much and also don't have to get up so early. I have ordered a supplement that I will hopefully have on Thursday. I'm sure I have a shortage of something. Maybe it will help for that. Now I have to just tell myself everyday to pace myself and not overdo it. That is so difficult to do with four kids in school. Just have to keep my chin up and move forward!
I have experienced the funniest thing. About 4 weeks ago I got bitten by a mosquito in two spots. It made really big red marks that stayed for about two weeks. Then it turned into bruises which I still have! Don't know what to think of it? Should I be worried? Maybe its just my funny body that's not working the way it should.
Happy blogging and thanks for reading!
Thursday 4 October 2012
The Pain!
Hi Everyone!
I think of all my aches and pains my headaches and lower back pain has been the worst. This morning I woke up from the pain in my back. It feels like someone stuck a knife in there and is slowly turning it to make me suffer. I find that for some of the pain in my body, like my neck, legs and arms, I can do some stretches that helps a bit. I just haven't found any stretch for my lower back. I can't even touch it. If anyone knows something I can do for that please let me know. Other than pain killers, which I took already!
Enough of that! I am trying to stay positive! I finally had some results with the enzyme therapy. My blood tests came back and it was pretty much normal. There were some things that were a bit low and they say I must take this certain supplement. Think I will try it just for the sake of trying something. I am off most of my meds. I only take my sleeping pill at the moment and obviously some pain meds when I can't take it anymore. So I guess a supplement might be a good thing. If this one doesn't do anything for me, I have a couple of other supplements I'm looking into! I will definitely do updates on the results! Pity it takes months with the natural stuff to really see results. This will definitely be a long journey for me. These are all natural stuff and it can't do me harm to try!
The other very good thing I did for myself is I bought myself a memory foam pillow! Wow, this stuff is amazing! It is really so comfortable! Now I will be saving to get the mattress cover too! It is such a pity that it is so expensive! The pillow alone is a huge improvement though and I would encourage everyone with fibromyalgia to get one!
Thanks for reading!
I think of all my aches and pains my headaches and lower back pain has been the worst. This morning I woke up from the pain in my back. It feels like someone stuck a knife in there and is slowly turning it to make me suffer. I find that for some of the pain in my body, like my neck, legs and arms, I can do some stretches that helps a bit. I just haven't found any stretch for my lower back. I can't even touch it. If anyone knows something I can do for that please let me know. Other than pain killers, which I took already!
Enough of that! I am trying to stay positive! I finally had some results with the enzyme therapy. My blood tests came back and it was pretty much normal. There were some things that were a bit low and they say I must take this certain supplement. Think I will try it just for the sake of trying something. I am off most of my meds. I only take my sleeping pill at the moment and obviously some pain meds when I can't take it anymore. So I guess a supplement might be a good thing. If this one doesn't do anything for me, I have a couple of other supplements I'm looking into! I will definitely do updates on the results! Pity it takes months with the natural stuff to really see results. This will definitely be a long journey for me. These are all natural stuff and it can't do me harm to try!
The other very good thing I did for myself is I bought myself a memory foam pillow! Wow, this stuff is amazing! It is really so comfortable! Now I will be saving to get the mattress cover too! It is such a pity that it is so expensive! The pillow alone is a huge improvement though and I would encourage everyone with fibromyalgia to get one!
Thanks for reading!
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